Finding the positive

There are lots of things that are going well, despite the disappointing setback.

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On Sunday, I shared that my inflammatory markers were off the charts high, which led to me having to increase my steroid dose. This was very disappointing, because the increase in steroids pushed my aortic valve replacement surgery even further away. The surgeons would like my steroids to be at a low/maintenance level - specifically 5mg. I am currently on 28mg of steroids and will taper 4mg a week. (Did you do the math? Let me help you - that would put the soonest probable surgery date at the end of March).

I had some dear friends come over for ladies' night. We used to get together to snack, drink and do a craft - but life got busy, the young ladies had babies, and we got out of the habit. They were so sweet and brought everything. I just sat there and enjoyed the snacks, drinks, conversation, and companionship. Oh, and I attempted to learn to knit... I haven't given up on it, I just need some more practice - and maybe a few YouTube videos. Throughout the evening the ladies asked good questions and provided lots of encouragement. They reminded me that I was at 60mg of steroids within the last two months, and have made lots of progress with the taper, even with the setback last week.

They helped me put things in perspective and I realized that I have plenty of positive things to be grateful for in the midst of my disappointment and frustrations.

I have had a pretty good week. I had two doctor's appointments but was able to do video visits, instead of traveling. I was having chronic nosebleeds and finally went to ENT last week. I haven't had a nosebleed in over a week - that is one medical issue solved! On Wednesday, hubby went into the office and a friend worked remotely from my house. We had someone bring us a meal. Girls Night was awesome. Friday a friend picked me up and took me to lunch and then a friend stopped by after work. And I am looking forward to seeing a friend on Sunday. (She was my classroom aide when I taught 20 years ago - and I haven't seen her in a really long time.) I have had multiple people reach out to schedule visits in the upcoming weeks, and I am looking forward to these future visits. I have had numerous texts from people checking in and providing encouragement. I have received a lot of mail - both cards and surprises. A neighbor friend left a cute Valentine's gift on our porch this week as well. How can you not smile when you receive Valentine's gnome socks. So many people have rallied around us to provide support and encouragement. I AM THANKFUL for all of you!

And, in other positive medical news, our insurance approved Humira as a WEEKLY dose! Last night was my first consecutive injection, instead of every two weeks. 🤞(fingers crossed) this increased dose kicks the inflammation to the curb!

Am I always positive? No. Last night I had a good cry. Not sure why exactly. It can be overwhelming and frustrating when I am unable to do basic daily tasks. But I will pick myself back up, refocus, and move forward. I am choosing to find the positives throughout my day - what positives can you find today?